Defining Coordinated Care for People with Rare Conditions: A Scoping Review

To coordinate care effectively for rare conditions, we need to understand what coordinated care means. This review aimed to define coordinated care and identify components of coordinated care within the context of rare diseases; by drawing on evidence from chronic conditions. Coordinated care is multi-faceted and has both generic and context-specific components. Findings can help to develop and eventually test different ways of coordinating care for people with rare and common chronic conditions.